The first time I saw my sister Jamie (Jamileh) was I think in Los Angeles in 1975, when I was visiting the U.S. with my father. She was my mother's first child from her first marriage. Jamie and a few other mentally-disabled "children" were being taken care of by a family paid by the state of California.
Jamie was thrilled to see us. She was sitting on a chair, hands on her knees, laughing and smiling like a sweet little girl. She was in her early 20s.
***
In 1992, my mother had gone through her fourth (fifth?) divorce and was living alone in Florida. She took Jamie out of state care and brought her home. But after a couple of months it became obvious that living with Jamie was easier said than done. Even with all the numbing pills, she was a challenge. She may have had the mental capacity of an eight-year-old, but in many ways she was an adult whose needs and wishes were difficult to control. She needed professional supervision. Jamie had to go back into state care in California.
On her way to California, Jamie stayed with me for a few days in Albuquerque, where I was a student at the University of New Mexico. Every morning she would dress up, purse in hand, ready to go out. It was not easy saying no to her, and I didn't want to. She was going to be with me for a short time so I thought why not let her do what she likes? We would get into my Volkswagen beetle and drive to the mall. Oh I can still see the excitement in her face, craving a Big Mac with fries and a Coke! That twinkle in her eyes when she saw a shiny purse or dress or shoe behind a store window!
***
I used to equate mental illness with insanity. But Jamie was far from it. She understood. She comprehended. I could see it in her eyes and gestures; she was a smart girl. A trapped little girl.
***
Jamie passed away Friday after complications from a severe cold. She's free at last.
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Condolences
by Anonymous Observer on Wed Nov 12, 2008 10:29 AM PSTVery sorry for your loss. You have done the right thing by bringing her story to light. There are still issues with insurance companies' coverage of care for mental disorders in the United States, and as a result, many individuals suffering from those illnesses cannot get the proper care that they require. The more these personal stories are told, the more the public debate about the issue can be effected.
We have come a long way in understanding the underlying medical causes for mental disorders, but still a lot more needs to be done to address this very important public health issue.
we all go
by armita (not verified) on Tue Nov 11, 2008 09:03 AM PSTsorry for your loss, but always remember that she will live in your heart. and one day you will be with her. we are all going, but we all get are tickets at a different time.
take care.
Sorry for your loss
by talieshah on Mon Nov 10, 2008 10:27 PM PSTMy condolences to you and your family. May she rest in peace.
Ghorbanat, Talieh
Tasliat
by ahvazi on Mon Nov 10, 2008 05:45 PM PSTRoohesh Shaad.
Aghayeh Javid, Kamaleh Tasliat
by KB on Mon Nov 10, 2008 01:21 PM PSTHaving a mentally disabled person in the family has a profound effect on the rest of the family , I know, I speak from experience.
I am truly sorry for your loss and I know exactly what you mean by “free at last”, she will rest in peace.
All the world's a stage
by sima on Mon Nov 10, 2008 10:58 AM PSTI just saw this. I'm so sorry. But I have a theory about the hereafter. I think it's one big cast party to which people go after the performance of their particular roles are ended. They leave the stage, take off the costume, wipe off the make up and join the others who made it to the party before them. Grab a cold beer, sit back and join post-performance banter: "Man, you did a fine job playing an asshole... and you, what was all that Mary-mother-of-God, holier-than-thou face about?" -- and yet another: "You sure were convincing playing the part of such ignorance and stupidity. It took all I could muster to play against that."
Now Jamie can put her feet up and laugh with the rest.
Jahanshah
by Kaveh Nouraee on Mon Nov 10, 2008 09:29 AM PSTPlease accept my deepest condolences on your loss.
May your sister rest in peace.
tasleeyat...
by ThePope on Mon Nov 10, 2008 12:38 AM PSTGhameh aakhar baasheh,,, Baghaayeh omreh shomaa va khaanevaadeh...
Roohesh shaad.
"On her way to California, Jamie stayed with me for a few days in
Albuquerque, where I was a student at the University of New Mexico.
Every morning she would dress up, purse in hand, ready to go out. It
was not easy saying no to her, and I didn't want to. She was going to
be with me for a short time so I thought why not let her do what she
likes? We would get into my Volkswagen beetle and drive to the mall. Oh
I can still see the excitement in her face, craving a Big Mac with
fries and a Coke! That twinkle in her eyes when she saw a shiny purse
or dress or shoe behind a store window!"
Love can never possess. Love is giving freedom to the other. Love is an unconditional gift, it's not a bargain.
There's a special kind of freedom sisters enjoy. Freedom to share
innermost thoughts, to ask a "favor", to show their true feelings. The
freedom to simply be themselves. -
Condolences
by jamshid on Sun Nov 09, 2008 11:30 PM PSTSorry to hear about your loss. My condolences to you and family.
I want to commend you and your family: Mental Illness
by I Have a Crush on Alex Trebek on Sun Nov 09, 2008 06:00 PM PSTI happen to know an Iranian woman who was abandoned by her family. It is heartbreaking what they have done to her, out of frustration I'm sure. But thank you for sharing your story. I hope others see the importance of supporting mentally ill family members. I'm sorry for your loss.
JJ, thanks for sharing ...
by Arash Monzavi-Kia on Sun Nov 09, 2008 04:48 PM PSTJJ, thanks for sharing your emotions on the loss of a family member and your firsthand insight into mental illness. May she rest in peace, and may you always stay courageous and open.
Arash M-K
Condolences
by Killjoy (not verified) on Sun Nov 09, 2008 03:35 PM PSTI'm sorry for your loss!
Sister of Mercy
by Leonard Cohen (not verified) on Sun Nov 09, 2008 01:09 PM PSTOh the sister of mercy is already parted and gone
She brought you her comfort and maybe she brought you her song.
If your life is a leaf that the seasons tear off and condemn
She will bind you with love that is graceful and green as a stem.
www.youtube.com/watch?v=oBFQg7P5YKw
My condolences JJ
by jimzbund on Sun Nov 09, 2008 01:09 PM PSTMay God bless her soul and give comfort to her family. We are all in transit in this world and sooner or later will join the dear departed ones. The only thing remaing will be a good name:
Saa'dia mardeh nekoo naam namirad hargez,
Mordeh aanast keh naamash beh nekooee nabarand.
Bund, Jimz Bund
Jahanshah, My condolences for your sisters's passing
by Mola Nasredeen on Sun Nov 09, 2008 10:49 AM PSTYour sister's soul lives on. My neihbor's daughter is for one. I dedidcate this song performed by John Prine to the memory of Jamie. //www.youtube.com/watch?v=PjAYLYG9Ii0
Jahanshah e aziz tasliat
by asghar62 on Sun Nov 09, 2008 08:42 AM PSTDear JJ,
I'm sorry for your loss.
JJJ
by Majid on Sat Nov 08, 2008 10:42 PM PSTJJ jaan, Please accept our condolences and sympathies.
T, Majid, Ray and Bobby
Free At Last
by Kuush (not verified) on Sat Nov 08, 2008 07:41 PM PSTHere is a poem by a great poet who suffered from mental illness for a good part of his life:
Hoch auf strebte mein geist, aber die Liebe zog
Schon ihn nieder; das Laid beugt ihn gewaltiger;
So durchlauf ich des Lebens
Bogen und kehre, woher ich kam.
High my spirit aspired truly, yet, love
brought it low; and grief bows it down still lower.
So I follow the arc of life
and return to whence I came.
(Lebenslauf/The Course of Life/Holderlin)
Tasliat.
It's so sad...
by Azarin Sadegh on Sat Nov 08, 2008 04:25 PM PSTIt's so sad that some of us can only bond and connect together through one’s death. Sometimes I wonder whether it is the sign of empathy or the fear of dying?
Azarin
Voila another great music by Satie...but I warn you, it's very sad:
//www.youtube.com/watch?v=r_w_lckqz8A&feature=related
JJ aziz ...
by nitemustfall on Sat Nov 08, 2008 03:34 PM PSTWe share your sorrow. Losing a love one is always hard, but remember we are all in-line for that destiny.
BeninTx
جهانشاه عزیز،
HajminatorSat Nov 08, 2008 03:24 PM PST
اين مصيبت را بر جنابعالی و بازماندگان محترم تسليت می گوييم.
Peace with you.
by PMK (not verified) on Sat Nov 08, 2008 02:54 PM PSTMy brother JJ.
Peace with you.
We will all be free at last.
PMK
Jamie,
by Stranger (not verified) on Sat Nov 08, 2008 02:35 PM PSTJamie, you life was precious. You’ll be remembered always.
tasliyat
by Masoud Kazemzadeh on Sat Nov 08, 2008 02:32 PM PSTJJ jaan,
My deepest sympathies and condolences.
Masoud
Please accept my
by persian westender on Sat Nov 08, 2008 01:45 PM PSTPlease accept my condolences.
"She's free at last"
by Anonymous77 (not verified) on Sat Nov 08, 2008 01:42 PM PSTIf it's any consolation, I expect she was freeer than a lot of us. Getting excited about small outings, may seem childish to some, but are a sign of freedom to enjoy with great awareness, every moment.
We are mostly all "mentally ill". According to Foucault there is no such thing anyway.
We come in all sorts of shapes and sizes and mostly there is no such thing as a norm in reality. People just tend to pretend to conform to survive.
She didn't have to and didn't bother. Free.
Sounds like she didn't do anyone any harm and lived a giggly life.
Cheers.
JJ Aziz, Sorry for your loss
by ebi amirhosseini on Sat Nov 08, 2008 12:33 PM PST****************
چرا از مرگ می ترسید
فریدون مشیریچرزا زین خواب جان آرام شیرین روی گردانید
چرا آغوش گرم مرگ را افسانه می دانید
مپندارید بوم نا امیدی باز
به بام خاطر من می کند پرواز
مپندارید جام جانم از اندوه لبریز است
مگویید این سخن تلخ و غم انگیز است
مگر می این چراغ بزم جان مستی نمی آرد
مگر افیون افسونکار
نهال بیخودی را در زمین جان نمی کارد
مگر این می پرستی ها و مستی ها
برای یک نفس آسودگی از رنج هستی نیست
مگر دنبال آرامش نمی گردید
چرا از مرگ می ترسید
کجا آرامشی از مرگ خوشتر کس تواند دید
می و افیون فریبی تیزبال و تند پروازند
اگر درمان اندوهند
خماری جانگزا دارند
نمی بخشند جان خسته را آرامش جاوید
خوش آن مستی که هوشیاری نمی بیند
چرا از مرگ می ترسید
چرا آغوش گرم مرگ را افسانه می دانید
بهشت جاودان آن جاست
جهان آنجا و جان آنجاست
گران خواب ابد در بستر گلوی مرگ مهربان آنجاست
سکوت جاودانی پاسدار شهر خاموشی است
همه ذرات هستی محو در رویای بی رنگ فراموشی است
تنه فریادی نه آهنگی نه آوایی
نه دیروزی نه امروزی نه فردایی
جهان آرام و جان آرام
زمان در خواب بی فرجام
خوش آن خوابی که بیداری نمی بیند
سر از بالین اندوه گران خویش بردارید
در این دوران که آزادگی نام و نشانی نیست
در این دوران که هر جا هر که را زر در ترازو زور در بازوست
جهان را دست این ننامردم صدرنگ بسپارید
که کام از یکدیگر گیرند و خون یکدیگر ریزند
درین غوغا فرومانند و غوغا ها برانگیزند
سر از بالین اندوه گران خویش بردارید
همه بر آستان مرگ راحت سر فرود آرید
چرا آغوش گرم مرگ را فاسانه می دانید
چرا زین خواب جان آرام شیرین روی گردانید
چرا از مرگ می ترسید
JJ
by kurdish Warrior (not verified) on Sat Nov 08, 2008 11:53 AM PSTMy deepest condolences!
Tasliat
by Orang Gholikhani on Sat Nov 08, 2008 11:45 AM PSTI'd like share your pain. As you said she is at last Free. I'm sure she continues to take care of you above rainy clouds.
Unity at last!
by Jahanshah Javid on Sat Nov 08, 2008 11:45 AM PSTThank you for all your considerate and loving messages.
I couldn't resist noticing that friend and foe -- so to speak -- came together to share their heartfelt feelings.
Take a look at each other, especially the one(s) you can't stand. You are all human, the same, only with different political, religious, social... views. Acknowledge that the person above or below you has the right to exist with his/her beliefs just as much as you do.
Now resume kicking and screaming!
I'm just kidding. Joking around is my way of dealing with tragedy.